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one-year covid anniversary reflections

 

Yesterday was the one-year anniversary of the day I tested positive for covid for the first time. All things considered I thought I had done well to avoid it for three years though it obviously also involves a lot of luck and privilege (of not having kids, having to work in an office, or needing a lot of social contact). On hindsight I could have done better: I trusted my loosely fitted kf94 too much and didn’t run for my life even when people around me were sniffing and coughing in a library, and had even stayed there for an hour around those clearly sick people. These days we don’t take any chances. N95s for all public transport, kf94s for all indoor spaces including our family’s apartments, and we run from sick people. I know some covid cautious people who don’t venture out of their homes at all so our measures could have been more extreme, but I had to find a balance between what I could do sustainably versus what would make me lose my desire to live. In the past year we also went on four international flights which we safely completed with 3m Auras fitted with sip valves and strictly no eating.

Why go to such extremes when it is mild and just a cold, one may ask if they are new to me. My infection had extremely mild respiratory symptoms and my fever hardly broke 38 degrees celsius, but I felt like my whole life had been drained out of me. I mean, why not when the virus attacks every cell and vessel of our body. I am lucky enough to not develop any visible neurological symptoms like brain fog or loss of smell and taste, and the debilitating fatigue I felt eventually went away after a few weeks. I even got back to running after a few months and now I am lifting weights. But till now I am not in a good place neurologically – depression, anxiety are all known post covid symptoms – and my heart rate goes berserk every now and then. My last episode was just a couple of weeks ago. My heart rate variability never recovered to pre-covid numbers.

But yes, call it a cold.

It is my belief that people think it is mild because they don’t monitor their biometrics. Perhaps with each infection their resting heart rate is permanently elevated by at least 10 beats but they see no cause for alarm. We can’t see DNA damage or easily test for immune system damage. People are suddenly developing chronic conditions like diabetes or thyroid disease but nope it is not covid.

I can’t tell how much of my depression is caused by my self, the neurological effects of the infection, or that this pandemic has really exposed how self-sabotaging we really are as a species.

My social ties with the people around me are now permanently altered, since no one around us is covid cautious we cannot unmask around anybody. I haven’t had coffee with a friend since the omicron variant arrived. I am pretty anti-social and I like being alone, but it would have been nice to grab a drink with someone once in a while, especially with those who are visiting from abroad.

This is my new reality, as long as I value my health. I have to choose having all my bodily and mental functions, or being human.

I wonder if I would have cared this much of my health if I didn’t spend the last 8 years trying to recover from a chronic illness which I may never recover from. If I was still healthy I would perhaps believe “it wouldn’t happen to me” when it comes to long covid. Like many others I would have blind faith in my immune system and trust that it would do its job like what the governments say. Don’t be like me and read too many books, and learn how fragile homeostasis can be. Just one hormone here and one neurotransmitter there stops functioning, and everything can cascade into a giant dtysfunctioning mess. Ask me how I know.


Nevertheless I celebrate passing one year without getting reinfected. In this day and age I think it is an incredible feat – I seldom pat myself on the back since you probably know how self-deprecating I am. But even Singapore has stopped reporting numbers though we held out much longer than others. I have no idea whether we are going through waves now, except for the cluster of positive tests that pop up on my ig stories sometimes.

I developed some ptsd from my infection too, and now every time I feel slightly weird in my throat or if my heart rate is elevated I go into a panic. I had gotten it shortly after my birthday last year, so this year my birthday made me feel impending doom, as though the same thing was going to happen again. I tell people I am afraid to get covid again and they look at me funny, telling me it is just flu what (singlish). I guess they don’t know flu viruses are carcinogenic too, do they?

I felt such a sense of relief that yesterday went by without much drama. I know it is irrational and arbitrary, I could get infected today or tomorrow. But it just seemed so hard to get through one year unscathed.


I guess I left out the most important factor to stay covid free apart from work and kids – one must survive a non-existent social life. Since a lot of the spread is caused by close contact and some of it is asymptomatic, it is virtually impossible to hang out with people since it is also virtually impossible to expect anyone to wear any mask, much less n95s. It is uncomfortable and awkward masked and trying to have a good conversation. In some other countries people form covid cautious bubbles so they can all go mask-free and have a good time. Here, I am fortunate to find a covid-cautious chat group that shares research, fears and anxieties. It really helped a lot, especially with my mental health.

I must not complain since I am partnered with someone on the same page as me, and I am sort of used to this – having to rely on online social contact instead of physical ones since I did spend long parts of my life pre-covid refraining from social contact due to social anxiety. But it still feels awfully alienating, and it is not fun being judged as a hypochondriac.

Even writing this post feels weird. I am weird, but I am not very good at doing weird things I suppose. Like any human I still crave for belonging and acceptance. I am not sure how many bloggers out there (who are not primarily long covid advocates because they have long covid) write about covid as much as I do. I can’t help but feel like people must tire of my constant attention on this by now. I am tired too, I too wish the pandemic is genuinely over so I can stop writing about this. Being able to stop writing means I am able to stop having it in my consciousness so much, and that would mean society has finally done something about it. I am just not that type of person who is able to ignore glaring parts of reality, which explains why I am in a poor mental state almost all the time.


The last year was spent in a somewhat hedonistic manner, partially because after getting infected and suffering from several POTS-like episodes including fainting twice with a 130+bpm heart rate, I felt like life has become too uncertain. Who knows when I’ll get reinfected again, and who knows when POTS or chronic fatigue will become a permanent part of my reality? Precautions as an individual may not work as well anymore, since the rest of society has given up. How effective is a n95 mask in a virus-laden environment? I have also spent countless time and energy worrying about my loved ones getting reinfected and not making full recoveries. It is exhausting.

To live a functioning life, I have to basically ignore reality, and become somewhat heartless since I cannot overcome people’s lack of desire to care about their own health. If they start faltering right in front of my eyes, I just have to be stoic and trudge on. Can I?

I celebrate one year of not getting reinfected. But the reality has not changed. There is some promising news about vaccine technology, but there is no longer an incentive to quickly bring it to market since no one cares anymore. I think the world is suffering from a collective trauma they are denying.


There can only be acceptance and coping. Nothing in this world says that reality has to be kind, or human beings have to be rational. I guess I have to be somewhat grateful that it is just a disabling virus that is causing me so much grief, and not bombs dropping on my apartment right now. I think life is pretty screwed up that we have to think this way. It is not a suffering competition, yet we have to minimise our own suffering in order to find some bright spot.

I wonder how did people cope during times of war and violence. Did they feel guilt too when they are able to carve out some joy in their lives when people were fighting and dying? Am I spoilt by the relative peace we’ve enjoyed in the past 50 years because most of human history is just full of destruction? Perhaps the difference is in an outright war most people are visibly suffering, whereas if not for the small covid cautious community and thousands of research papers I might seriously think I am insane.


I might as well get used to living in this sort of despair and chaos. The first 2-3 years of the pandemic felt like I was holding out for an end in sight, whereas the past year felt like I was going through the five stages of grief. The world may never feel safe anymore, or perhaps it was an illusion that it ever did. How do I live in an unsafe world, is an existential search I am going through. Maybe the damage brought by sars-cov-2 is minuscule compared to future viruses. H5N1 is already infecting cattle in the US and is found in raw milk. Viruses aside, there are ongoing wars, and the environment is getting hotter every day.

Like many others I want the life before 2020 back, and it is difficult to accept it may never come back. I have begun to read zen buddhism books again, because its entire philosophy is based on meeting life as it is. In buddhism all perceptions of solidity is an illusion, and I find that frame of mind very helpful trying to interact with a world that is threatening to fall apart any moment.


Can I survive another year without getting reinfected? I doubt it. But I will till try. Trying unfortunately means continuing to jeopardise my relationships as I continue to feel sad and disappointed every time someone minimises the virus, while they think I clearly have mental issues. I am trying not to let my ongoing sadness and grief affect the only relationship I have left – my partner – but it is hard. I have been shrinking as a person, because my world has been shrinking too. Yet ironically, to be less unhappy my world must shrink, because it is untenable to care about people who don’t want to care about themselves, or a world that is bent on self-destruction. I don’t have the emotional capacity to care enough about myself, much less anything else. Is it okay to exist with a broken mind and soul?

At the very least it feels comforting to be able to type this long page of words out. That I can still have this tiny will in me to write this despite believing I will be judged for it. This is the only place I can hold on to some sense of truth and self.


related posts
Winnie Lim

21 Apr 2024 at 05:10

Scripting News: Saturday, April 20, 2024

 

Saturday, April 20, 2024

Quiet mode for the blogroll#

  • After living with the blogroll on the home page of Scripting News for about a month, and having heard from early testers, I felt that it was demanding too much attention when I was reading stuff on the blog. So I made some time last week to experiment with a subtler sidebar.#
  • In Quiet Mode, the blogroll doesn't call attention to itself until you click on it. Then its background changes from neutral to white. That's the equivalent of shining a spotlight on it. Also the borders become blue to indicate that the browser's focus is on the blogroll.#
  • I wanted to do more to tone it down. So, in Quiet Mode the title moves up and to the left, and is in a much smaller font, boldface, nicely visible and stands off from the list, but doesn't call your attention to it. It's there when you want to know more. #
  • You may want to call it something other than a blogroll, btw. If you're using blogs to coordinate projects with others, something I think a lot more people would do if it worked better, instead of "blogroll" you'd might call it your "workgroup."#
  • Anyway, I have switched Scripting News over to the new quiet mode, it's already the default, but I put a checkbox just below the blogroll that lets you toggle between the two modes to see the difference and possibly spot problems. The checkbox will go away before long. I just want it there to quickly do an A-B comparison. #
  • Here's a quick video demo of Quiet Mode. #
  • And a place to comment or ask questions.#

Scripting News for email

21 Apr 2024 at 05:00
#

Sarah Sherman and Chloe Fineman at the Paramount.

Congress Avenue with the Capitol and Paramount Theatre.
Manton Reece

21 Apr 2024 at 03:13

Phonefree

 
Bookmarked Living Like It's 99: No Social Media, No Smartphone (alvarez.io)
At the time of writing this article, I’ve been living without social media for 3 years and without a smartphone for 2 years. Everything started as an experiment motivated by my privacy concerns. I ended up living like that for an entire different reason: peace of mind.

Technology has given us instant access to everything. From internet with all of humanity’s knowledge, to food delivery at our door, or even cat videos, you have an app for it. But technology has also given everybody access to you, and that’s bad. Not everything requires an instant response, nobody will die if you answer a text message later today or even tomorrow.

This sounds appealing, and even maybe plausible… except that I was one of those weirdos who held out as long as possible on Windows Phone, and even though I thought it was a superior OS, still eventually gave in because of apps. (Do I hate going to the ATM enough to keep a smartphone I don’t want? Apparently.)

I didn’t used to keep my phone on me nearly all the time, then I started needing reminders to take medication a couple times a day. I’m testing out whether my Fitbit alarm could fill that role for me — if so, I could stop carrying it around.

I still have my old digital point and shoot from circa 2004 — I’m curious how teensy the photos are 😂

Another thing I use it for often is recipes… but I’ve been considering getting a new computer, so my laptop could become a floater and live downstairs for that purpose instead 🤔

The cheapest Garmin car GPS model on their website is under $200. Frankly, I don’t even need directions most of the time, it’s just helpful if I go somewhere horrible to drive like downtown Seattle.

The thing is, I do want to have a phone available when I drive somewhere in case I break down. But a bit of looking around made it sound like AT&T is a harder network than others to use some random cheapo dumb phone… and dumb phones that’ll work are actually not that cheap ($60+?). So probably I won’t do it 🤷‍♀️

 

See also: How to live without your phone by Sam Kriss

I stopped playing Fruit Ninja, eventually. But for nearly fourteen years afterwards, I stared at a smartphone every single day. Five thousand days, all in all. I can’t think of anything else I’ve done with the same level of commitment. There have been days where I’ve had nothing to eat or drink and there have been nights when I didn’t sleep. But until very recently, I never once went twenty-four hours without remembering to look at my phone.

After a while without my phone, I started to really notice how much everyone else was staring at theirs. On public transport in particular. Every adult is sitting there, pushing around coloured squares and popping coloured bubbles. They are playing with toys for babies. Now look at their faces. These people are not being entertained. They’re not having fun. They are turning their brains off while they wait.

Not using a phone taught me what a phone is really for. It’s not for communicating with other people, getting directions, reading articles, looking at pictures, shopping for products, or playing games. A phone is a device for muting the anxieties proper to being alive.

 

Related:

Read The Shallows

The value of friction

Tracy Durnell

21 Apr 2024 at 01:41

When real life does not compute

 What series of events–what algorithm–led to this bird in my tree?

I often ask this question any time I’m entering or leaving my driveway.

A tiny owl of some sort has decided to make its home in a small tree in my front yard. The tree is really close to the driveway. I could probably jump up and touch the owl if I wanted to, though I wouldn’t, because he very well may chomp off a finger. And I’m quite fond of my fingers.


📝NOTE: My family has taken to calling this bird Hootie. We’ve also defaulted to referring to the owl as a he. We do not know the bird’s gender and all inquiries into the matter have resulted in blank stares. Because the other members of my family value their fingers as much as I value mine, none of us has attempted a physical examination.



Video proof of Hootie

I simply cannot justify why this owl has made his home in the tree in our front yard. There must be far better trees he could have chosen. Trees with higher branches. With better coverage. And these far better trees aren’t far away. Hell, he’d need to look no further than the other side of our front yard.

Yet here he is.

For some strange reason, I feel honored that he’s chosen our tree as his home.

Every morning and evening when I go to and from my car, I look up to see if Hootie is in the tree. And I can’t explain the excitement I felt when one morning I looked into the tree and saw his eyes were open and staring back at me. Up until that point, I’d only seen him with eyes closed as he snored away in broad daylight. Only a few mornings ago, my son who’ll start middle school next year was excited to finally see Hootie’s eyes open.

This whole situation makes zero sense for a couple reasons:

  1. Why is this bird here?

  2. Why does my family care so much?

But we do. It’s something out of the ordinary. It’s a simple pleasure we’ve learned to enjoy.

Yet when I think about this bird-brained situation, I can’t help hearing in my head:

This does not compute. This does not make sense.

If you had told me before this bird showed up that I could be excited about having an owl in my front yard, I would have laughed and said no way.

But the reality is there’s no way I could have optimized for this experience. This experience was not on my radar. Yet it’s something I look forward. It is, in its own way, inspiring.

This situation doesn’t feel like optimization. It feels like serendipity.

But AI in the forms of social media engagement algorithms1 have removed serendipity from our lives and have instead replaced it with the likes of the masses. These algorithms don’t cater to your specific tastes. They offer the most mainstream versions of the content they think you’re interested in, leading to a more-often-than-not generic experience.

Would AI have ever thought to put a bird in my front yard to make me happy?

Maybe, if you ask those who think human beings are just a bunch of data we’re unaware of–and little more. Maybe the data was already there to pick through and make the call. But what if it wasn’t?

This does not compute.

Yet it is.

And I’m so glad.

With each passing day, Jake LaCaze is learning to embrace the joys uncertainty sometimes brings.


  1. Social media engagement algorithms and the illusion of choice on jakelacaze.com ↩︎

Jake LaCaze

21 Apr 2024 at 01:32

Global nutrient transfer

 
Replied to What gets delivered with the compost by Antonia Malchik (On the Commons)
That growing mountain of trash, and the fact that when I was a teenager thirty years ago the landfill was not a mountain, but a pit in the same location, makes me want to try harder to live close to home, to take more responsibility for this place I love so much and all those who depend on its vitality. To eat more huckleberries and spruce tips gathered from the surrounding mountains and far fewer avocados shipped thousands of miles from places whose dire water situations I’m too well aware of to pretend ignorance.

Trade and exchange have been around essentially forever. How much is too much, though? How far is too far? How do the critical quantities of phosphate mined in the Western Sahara and sent to fertilize farms all over the world compare with peat moss harvested fifty miles from me and used to feed gardens like mine?

I knew natural nutrient transfer from the Sahara to the Amazon was important ecologically, but I never considered human-driven nutrient transfer from the tropics to temperate zones.

(FYI: Composting your food scraps is one of the best behavioral changes you can make at home to help with climate change. In the landfill, they emit methane gas; as compost, they sequester carbon into the soil. See if you have access to a municipal program!)

Tracy Durnell

21 Apr 2024 at 01:10
#

In early April, I posted about Cleveland Plain Dealer editor Chris Quinn, who wrote a column saying that he was going to continue to tell the truth about Donald Trump, even when it offends those who are paying for information. Dan Froomkin has an excellent interview on PressWatch with Chris Quinn, including more on how Quinn took a long time in writing the piece, and opinions on the national news media and how editors are afraid. It is a good read!

Andy Sylvester's Web

21 Apr 2024 at 00:57
#
 🔗 The Microsoft-Dilemma - Europe as a Software Colony
Many state and public administrations from Helsinki to Lisbon operate with the software of the US corporation. It makes them vulnerable for hackers and spies, violates European public procurement l...

This is a bit of old news for someone who's been following this since the original Linux powering Munich experiments in the early 2000's.

While native apps are arguably better for data entry heavy apps and everything's a web app these days, that everything's a web app today makes it easier for end users to run any OS. That said, it also means you can no longer do whatever you want with the "documents" produced by the app because they live in a database in their data center.


Comment by email
James Van Dyne

20 Apr 2024 at 22:49
#
 

You’re doing yourself a grave disservice if your writing opens with something boring or banal. You’re going to lose me, at least. I’ve got a list of stuff to read and watch as long as your arm.

Maggie really digs into this, in an effort to get better.

Your challenge is finding the compelling problem in your topic, and clearly presenting it up front. That problem might be deeply buried under a bunch of boring facts and informational details. It might be hard to figure out what it is, and hard to describe once you’ve found it.

The examples Maggie pulls together, both bad and good, are compelling. Don’t miss the ending, which is a heck of a way of saying they are just as important.

Chris Coyier

20 Apr 2024 at 22:22
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